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Wednesday, November 27, 2013

PGD info submitted to insurance for review

After a ton of run around (and much stress) I finally got things submitted to our insurance for review to see if they will give me authorization to do the PGD testing (embryo testing, (do it on day 3) that helps us see which one's are chromosomal normal to help our chances of pregnancy and no mc - at my age 1 in 5 embryo's will not be normal so this will help us determine which one's we should transfer, give us better chances). 
They are reviewing the information from my Dr. and should have a answer in a week or so. 
PLEASE PRAY they approve this testing and will pay for it. Doing this test will really improve our chances and being this is our last fresh IVF we really need this to be something we can do. After all the stress I went through to get this information submitted to them I just need them to say yes and give us authorization for this testing.
12/4 - Totally bummed - Insurance denied the PGD genetic testing. Without this testing no way to know if any of my embryo's are any good could be going thru IVF for nothing. Starting to feel like it does not matter what we try we won't end up parents. :(

Tuesday, November 26, 2013

Started Provera

CD22 today. Started in on Provera yesterday for the next 12 days to bring on my period. Meds usually work pretty fast on me so I am thinking by next week we will be getting this IVF going. Not looking forward to winter here in WI and snow and trips back and forth to our clinic almost 2hrs one way. Had a dusting of snow already this week just praying it all holds off for us. Scott should be able to do some driving soon his shoulder is getting better, if nothing else I can shift for him if the weather is bad he is better at handling it then me. I don't see us being able to consult in IL with Dr. K this time around just too much travel and I won't drive there. I'll just have to go off what we did in the past for starting my blood thinners, predisone and setting up the intralipids. I can't really do the NK killer testing anyway as my insurance is bawking at paying for repeated testing right now and being stuck with $900 lab bills each time they test is not what we can do.

The main issue now is getting my IVF medications. I have most leftover I can use but there is one I still need. I've been going crazy dealing with my insurance's new policy that says I need pre-auth to get my IVF medications now. My Clinic had to re-fax them the information as they said they did not get it all the first time. I've been on the phone Friday, Monday and Today going back and forth and about to pull out my hair just to get my meds. And the specialty pharmacy is closed for the holidays on Thurs and Friday so I don't know if I will even get my meds shipped out this week. Thankfully I have 5 shots of a similar med Ganirelix we can use if the Cetrotide does not show up in time. Also still dealing with getting my insurance the information they need to review for the PGD testing pre-auth they said they never got that fax also and I had to have my clinic re-fax. It's enough to drive one crazy dealing with this all and some of my insurance reps are down right rude and you never get the same rep so I have to explain the situation every time I call. Right now I am waiting to call again as they did finally receive the fax for my medications but the nurse has to review it yet today.

Thanksgiving will just be me and Scott. My sil passed away in Oct of cancer and she always hosted thanksgiving for my husbands side of the family and with her gone it seems they won't be getting together this year. My mom is gone volunteering to help with a community meal. We don't really have any other family so it gets lonely for the holidays and not something I even look forward to anymore. More than likely we will end up with a close to Christmas transfer again this time around. Our #3 IVF we transferred on Christmas Day. Making any Christmas plans is hard to do till I get my calendar.

Getting very weary of  the constant stress of ttc. My 40th Birthday is coming up Dec. 10th closer we get the more down I've been feeling. I think last 6 months I really been feeling my age and looking at friends with kids almost grown makes me feel even older and sadder while we have none. Tired of having a empty nest and nothing to look forward to especially around the holidays. So ready for our Christmas Miracle!!!

Friday, November 22, 2013

Karyotype Tests

Very happy my dh and I karyotyping genetic testing came back normal. Guess it's one more thing ruled out as the problem. So now we are just waiting on getting my IVF meds and see if insurance will approve PGD testing of embryo's. Should be starting provera soon to get things going waiting on a call from them yet to tell me when to start. Really hoping a fresh cycle will be it for us that things will work this time around.
 

Sunday, November 17, 2013

Sonohystergram

This past Friday I had my Sonohystergram test done with my RE. Everything looked good, the tiny cyst was gone but no guarantee it won't return when I start meds again. This time around it was very painful lots of cramps but thankfully it didn't last long. They put me on antibodies for 5 days but I've had lots of spotting and period like cramps since Friday, can't remember if I had this last time they did this test or not. Hopefully it goes away soon or I may have to let them know. Now it's just waiting for our Karyotype tests to come back.

Tuesday, November 12, 2013

Nov 12th - one year of loss

Today has been a difficult day. One year ago we found out baby H or Uriel as I named him/her had no heartbeat and didn't grow past 6wks. It was one of the saddest days of my life and one year later it has not gotten any easier. My dh says we can't live in the past but for me I won't ever forget the life that was and could of been and continue to pray my arms won't remain empty forever. 

It's made even harder as I had really thought by now we would of been pregnant again. Never would of imagined we would still be trying and looking at doing IVF again. All I have of Uriel is a one ultrasound pic and bfp hpt to show he/she even existent. I do wonder if someday in heaven I will see the children we lost if they will all be there so I can meet them and get to know who they where suppose to be. 

"When you lose a parent you lose your past. When you lose a spouse you lose your present. When you lose a child you lose your future. When we lost our child. We lost the child, we lost all the hopes and dreams we had for that child. We live with the would of, could of. We long for, miss and love our child as long as we take breath." 

Monday, November 11, 2013

Lab Results for IVF#4

Fertility clinic called getting my meds called in for IVF. I still have follistim left from last IVF we can use so just needing the cetrotide and antibodies and valium for transfer. Plenty of PIO and Estrogen left too. Will be on blood thinners and predisone and do intralipids again too.

Told me that my AMH is 5.0 (which is ok for PCOS just means I don't ovulate every month) and my FSH is 3.92 - so both normal and good for someone who is turning 40 in a month. So one less thing to worry about should be good to go for eggs this time around. 
The FSH results will also go into my insurance to see if we can get approval for the PGD testing. Really praying they do as I know it is something that can really help determain which embryo's are normal to transfer and drastically reduce chance of mc.

Now it's on to Friday's sonohystergram and hoping no cysts still lingering or anything abnormal.

Then it's just waiting for Karyotyping tests results if normal I start in on provera to bring on a period and we get going.
I am enjoying the time off from ttc right now. Taking care of my dh from surgery and giving him time to heal also. I just hope we get our Christmas miracle finally as every year that goes by I keep thinking this will be it. 

Saturday, November 9, 2013

IVF #4 and Life

Yesterday was a LONG day. Up at 5:30 to get my husband to his PT apt. PT went well he can't really use his arm at all no lifting of anything hardly any movement it has to stay in the sling, just can move his hand and do a few exercises with his shoulder shrugging, he won't be able to even start back to lifting till almost end of Dec. and then through Jan work on building back strength so this is going to be a long process.

Then I drove to my RE apt Scott helped keep me awake and focused but it was really hard to get there and back driving. We decided to do the karyotyping testing and had blood drawn for me and Scott, only bummer is it can take a few weeks to get the results and we can't move forward with IVF till we know if something genetic is wrong. Talked over a plan to start in on Ganirelix or Cetrotide right away with the Follistim (instead of day 5-6) to keep the LH surge down as it may help PCOS patients have better egg quality and that they also only use lupron now to trigger to prevent OHSS. My RE is going to send in the info to my insurance to see if we can get approval for the PGD/PGS testing of the embryo's that is another thing that may help just in the aspect of telling them which one's would be normal and which one's not meaning I would probably mc those not normal one's so we don't transfer them. Also means all of them could be abnormal too. Don't have the results of my AMH or LMH in yet but he said either way we would start at the max of Follistim 450IU again. So right now it's more waiting and praying that the karyotyping is normal and if we see any issues during the sono like the tiny cyst that we can just drain it, and this all getting done before Dec. 31st.

Figure my goal next few weeks while waiting is eat healthy and lose the weight I put back on so back to exercise and a detox. Also will give my dh some time to recover from his shoulder surgery before we start in on stimming and apt's etc. for IVF. I don't think I will be able to get to IL to see Dr. K this time around with my dh not able to drive there so not sure if I will get her opinion on things yet or not this time around. Hoping to get some much needed sleep today and tomorrow as I am so exhausted from this week's activities my body really needs it.